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DTSTART;TZID=America/Chicago:20250530T173000
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SUMMARY:Rare Disease\, Real Impact: How a Nameless Disease Created a Community at SLC6A1 Connect
DESCRIPTION:Join UTSW's Biotech Club for a panel discussion with SLC6A1 Connect. They will be hosting panelists Amber N. Freed\, Kim Fry\, and Whitney Feldman MHA\, mothers and leaders from SLC6A1 Connect. We are also honored to host Dr. Steven Gray\, a UTSW professor researching SLC6A1\, a rare neurological disorder known only by the gene that causes it.  \n\nLearn how collaboration between scientists and families drives progress\, and how advocacy is shaping the future of rare disease research.
X-ALT-DESC;FMTTYPE=text/html:Join UTSW's Biotech Club for a panel discussion with SLC6A1 Connect. They will be hosting panelists Amber N. Freed\, Kim Fry\, and Whitney Feldman MHA\, mothers and leaders from SLC6A1 Connect. We are also honored to host Dr. Steven Gray\, a UTSW professor researching SLC6A1\, a rare neurological disorder known only by the gene that causes it.  \n\nLearn how collaboration between scientists and families drives progress\, and how advocacy is shaping the future of rare disease research.
LOCATION:5323 Harry Hines Blvd NB2.EEF Auditorium Dallas TX 75390
UID:e.3812.1199268
SEQUENCE:3
DTSTAMP:20260503T115828Z
URL:https://biontx.growthzoneapp.com/biontx-event-calendar/Details/rare-disease-real-impact-how-a-nameless-disease-created-a-community-at-slc6a1-connect-1399474?sourceTypeId=Hub
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